The last several weeks....
So I have been holding off on writing this until I started getting more results in. One month ago I began another round of tests, exams, and workups. My system has been a disaster. As stated in past posts I have had many neurological issues but I have also been having many other issues. My issues were basically mimicking menopause. I was always hot, even in 25 degree weather, I had the face of a pubescent boy. Cystic acne worse the high school and hair growing in very unwanted places. I had dryness and very bad pain in my nether regions which was extremely annoying. My periods were extremely heavy and often late/early. My doctor gave me a hormone panel. My DHEA levels were extremely high and my FSH levels were almost rock bottom. I did two CT scans to check for a tumor on my adrenal glands. No tumor. I did ultrasounds and other tests To confirm what was wrong. They found between 10-15 small cysts on my ovaries and one extremely large on on my right ovary. They came to the conclusion I have PCOS. They also found significant scaring pointing to Endometriosis. On top of all that they determined I have something called interstitial cystitis which is basically Inflammation of the bladder which causes extreme pain and frequency to urinate. They are putting me on a two week course of Elmiron to see if it helps with the interstitial cystitis. I am still weighing whether or not to start it due to some of the long term problems it can cause. Which includes the ability to bruise extremely easy which could also lead to internal bleeding just from bumping into an object wrong. I go Thursday for a colonoscopy to determine why there is so much dark blood in my stool. My doctor mentioned that it could be Endometriosis growth that spread to my Intestines. If this is the case then surgery of the area may be necessary. I wont know until after the procedure. Now back to the PCOS. My doctor wants me to attempt to lose weight. She recommends losing 30-35 lbs which would put me at 130 (my high school weight) With PCOS it is extremely hard to lose weight. She thinks that if I can lose that amount of weight then I can stop the PCOS from worsening and maybe even make it go dormant. If in six months I am either unable to lose the weight or The cysts worsen then removal of one if not both of my ovaries is to be considered. The main issue with my PCOS is my cysts get very large in size and can cause internal bleeding when they burst. This has happened once before, last year, and could possibly happen with the current large one if I dont use precaution. I think what makes me sad about the possibility of them taking my ovaries is that even though I didn't want more kids anyways I still wanted to be able to make that decision on my own and instead my body is making it for me. All of this is just for my lady bits. Another thing that I have been going in and doing tests for has to do with my leg/hip. After testing it was determined that I have hyper-flexibility of the right leg, arthritis in my knee and ankle and plantar fascitis. On a positive note my doctors are reviewing my files and MRI results and may possibly finally be able to rule MS out. I need to do more testing but basically they are trying to figure out if the numbness and brain inflammation are being caused by nerves pinched in my herniated C2 & C4 spinal discs. If this is the case I would need spinal surgery to fix it OR I could just live with it. Honestly I would be happier living with KNOWING Its NOT MS then never knowing. I could live with knowing my issues are caused by pinched nerves rather then something as shitty as MS. Apparently pinched nerves in your cervical spine can mimic MS. I am truly hoping this is the case but until we figure it out I am still in the dark. Another unfortunate and annoying thing we found out is I have high cholesterol. Not the worst thing just annoying on top of everything else. I go in in six months for another round of blood tests to check my levels. If it is still high then they want to put me on meds. FUN. So yea. this has been whats been going on the last few weeks. Another fun year in my life.
I am a 26 year old mother of one. I suffer daily from health ailments and am beginning a paleo lifestyle in order to hopefully help. This blog is my journey.